As I write this I am sitting in my 9 mo. old sons hospital room. I'm having a serious de ja vu moment of last spring being in the same situation w/ our 4 yr old. Except that time she was in Peds ICU on oxygen for 3 days w/ asthma like symptoms. This time we are just in a regular room with only a pulse-ox(?) monitor and we are hoping to go home after just one night.
I woke up this morning trying to decide if this was the worst night of my life. Well, "wake up" is a deceptive term, because there is no sleeping in a hospital.
We got a roommate during the night that had Down Syndrome and Cerebral Palsy. Nurses are coming in all the time checking blood, temps, lungs, the works. She has thrown up several times and they might start a feeding tube, so that she can take her Anti-seizure medication.
The nurses are all really nice here. They come every 4 hours to suction my sons nose. That was his only problem -mucus was blocking his airways. Though he did have pneumonia and an ear infection to clear up. The nurses feel bad that he keeps waking up, when ever they have to come in (like very 15 min.) and they are always asking me if I want more water or juice.
I can't help but over hear the conversation on the other side of the curtain. They have a much tougher question. What should we put in your daughters records? "Do not inti bate/ Do not resuscitate?"Our roommate essentially began with the same diagnosis as my son - a cold with mucus that she couldn't clear, and pre-pneumonia in her lungs. But, because of her condition, she has advanced to a more critical stage. Is it also because of her condition that they even asked the question?
I am trapped here by a boy on my lap that is attached to monitors. I cannot escape this most personal of conversations. Is it more selfish to let her go, or let her fight? The family struggles with this question. Though it is only hypothetical at this point, they want the family to make the decision before it is a life or death moment.
Then they moved her to the ICU side, where they could monitor her more closely. I can only pray for this family, to give them peace with their decision. I also know that any day that doesn't require me to make that choice for my own precious kids, qualifies as the best day of my life.
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